The 2021 International workshop on Alport Syndrome
If you would like to participate in or sponsor the next workshop, please email Susie Gear at research@alport.info. We particularly encourage the following groups to participate:
- young people with Alport Syndrome or
- early career researchers.
Funding is available to help with part-funding registration, travel and accommodation. We encourage all to contribute something themselves or fundraise to support their participation, as we will give priority to those who contribute to the collaboration or collaborative funding effort.
20-22 August 2021, Scientific workshop, Beijing, China
17-18 August 2021, day trips to the Great Wall and to see Beijing
Key dates
- 16 August – organisers arrive, set up and prepare
- 17 August – a day trip to the Great Wall and hike for those wanting to explore the remote bits
- 18 August – a day trip to see the sights of Beijing.
- 19 August – workshop for national patient organisations with a selection of Workshop scientific committee members joining by invitation (as in Siena 2019) to brief the patients with short updates about different aspects of Alport Syndrome.
- 20-22 August for the main scientific workshop
Organisers for The 2021 International workshop on Alport Syndrome: alport UK working with China Patient Organisation and Peking First Hospital, Beijing
Susie Gear, Jessie Zhang, Mr Cai, Jie Ding,
Fang Wang, Lily Guohua He
Administrator: Clare Charrington, Alport UK
The 2021 Workshop Organising Committee:
Professor Colin Baigent, MRC Scientist, Hon Consultant in Public Health, Oxford, UK
Professor Constantinos Deltas, University of Cyprus, Molecular Medicine Research Center, Nicosia, Cyprus
Professor Jie Ding, Department of Pediatrics, Peking University First Hospital, Beijing, China
Professor Frances Flinter, Consultant in Clinical Genetics, Guy’s Hospital, London, UK
Dr Daniel Gale, UCL Centre for Nephrology, London, UK
Professor Oliver Gross, Department of Nephrology and Rheumatology, Georg-August-Universität Göttingen, Germany
Professor Clifford Kashtan, Department of Pediatrics, University of Minnesota, USA
Professor Bertrand Knebelman, Necker Hospital, Paris, France
Professor Rachel Lennon, Wellcome Trust Centre for Cell-Matrix Research, University of Manchester, UK
Associate Professor Julian Midgley, Department of Paediatrics, Alberta Children’s Hospital, Canada
Professor Jeffrey Miner, Washington University in St. Louis, USA
Dr Laura Perin, Saban Research Institute, University of Southern California, USA
Professor Judith Savige, University of Melbourne, Australia
Professor Alessandra Renieri, Professor of Medical Genetics, Director of Medical Genetics Unit, Azienda Ospedaliera Universitaria Senese viale Bracci 2, Siena, Italy
Associate Professor Michelle Rheault, Department of Pediatrics, University of Minnesota, USA
Professor Roser Torra, Fundació Puigvert, Barcelona, Spain
Professor Neil Turner, Professor of Nephrology, University of Edinburgh and Consultant Nephrologist, Royal Infirmary of Edinburgh, UK
Patient representatives:
Dave Blatt, Alport Foundation of Australia
Maria José Cacharron, Spain
Susie Gear and Tim McLean, alport uk
Andre Weinstock, Alport Syndrome Foundation, USA
Daniela Lai, A.S.A.L., Associazione Sindrome di Alport, Italy
Julia Schifter, Alport Foundation Israel
Christof Finkler, Alport Selbsthilfe, Germany
Jessie Zhang and Mr Cai, Chinese patient group, China