The 2021 International workshop on Alport Syndrome

The 2021 International workshop on Alport Syndrome

If you would like to participate in or sponsor the next workshop, please email Susie Gear at We particularly encourage the following groups to participate:

  1. young people with Alport Syndrome or
  2. early career researchers.

Funding is available to help with part-funding registration, travel and accommodation. We encourage all to contribute something themselves or fundraise to support their participation, as we will give priority to those who contribute to the collaboration or collaborative funding effort.

20-22 August 2021, Scientific workshop, Beijing, China
17-18 August 2021, day trips to the Great Wall and to see Beijing

Key dates

  • 16 August – organisers arrive, set up and prepare
  • 17 August – a day trip to the Great Wall and hike for those wanting to explore the remote bits
  • 18 August – a day trip to see the sights of Beijing.
  • 19 August – workshop for national patient organisations with a selection of Workshop scientific committee members joining by invitation (as in Siena 2019) to brief the patients with short updates about different aspects of Alport Syndrome.
  • 20-22 August for the main scientific workshop


Organisers for The 2021 International workshop on Alport Syndrome: alport UK working with China Patient Organisation and Peking First Hospital, Beijing

Susie Gear, Jessie Zhang, Mr Cai, Jie Ding,

Fang Wang, Lily Guohua He

Administrator: Clare Charrington, Alport UK


The 2021 Workshop Organising Committee:

Professor Colin Baigent, MRC Scientist, Hon Consultant in Public Health, Oxford, UK

Professor Constantinos Deltas, University of Cyprus, Molecular Medicine Research Center, Nicosia, Cyprus

Professor Jie Ding, Department of Pediatrics, Peking University First Hospital, Beijing, China

Professor Frances Flinter, Consultant in Clinical Genetics, Guy’s Hospital, London, UK

Dr Daniel Gale, UCL Centre for Nephrology, London, UK

Professor Oliver Gross, Department of Nephrology and Rheumatology, Georg-August-Universität Göttingen, Germany

Professor Clifford Kashtan, Department of Pediatrics, University of Minnesota, USA

Professor Bertrand Knebelman, Necker Hospital, Paris, France

Professor Rachel Lennon, Wellcome Trust Centre for Cell-Matrix Research, University of Manchester, UK

Associate Professor Julian Midgley, Department of Paediatrics, Alberta Children’s Hospital, Canada

Professor Jeffrey Miner, Washington University in St. Louis, USA

Dr Laura Perin, Saban Research Institute, University of Southern California, USA

Professor Judith Savige, University of Melbourne, Australia

Professor Alessandra Renieri, Professor of Medical Genetics, Director of Medical Genetics Unit, Azienda Ospedaliera Universitaria Senese viale Bracci 2, Siena, Italy

Associate Professor Michelle Rheault, Department of Pediatrics, University of Minnesota, USA

Professor Roser Torra, Fundació Puigvert, Barcelona, Spain

Professor Neil Turner, Professor of Nephrology, University of Edinburgh and Consultant Nephrologist, Royal Infirmary of Edinburgh, UK


Patient representatives:

Dave Blatt, Alport Foundation of Australia

Maria José Cacharron, Spain

Susie Gear and Tim McLean, alport uk

Andre Weinstock, Alport Syndrome Foundation, USA

Daniela Lai, A.S.A.L., Associazione Sindrome di Alport, Italy

Julia Schifter, Alport Foundation Israel

Christof Finkler, Alport Selbsthilfe, Germany

Jessie Zhang and Mr Cai, Chinese patient group, China


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