privacy & cookies

At alport uk we are committed to protecting your privacy. This policy sets out how alport uk uses and protects any personal information that you give us. This includes any personal information you provide:

  • on our website, alportuk.org
  • when you send us any forms or other documents in connection with your support of our work;
  • or whenever you contact us.

If you have any questions about this policy or do not agree with it, please contact us at info@alportuk.org  before providing any personal information.

We may change this policy from time to time by updating this document in order to reflect changes in the law and/or our privacy practices but we will not use your personal information in any new ways without your consent or as permitted by the Data Protection Act 1998. You should check this policy from time to time to ensure you are happy with any changes. This policy is effective from 22 December 2014

What information do we collect?

We may collect personal information when you ask about our activities, register with us, order products and services, seek information, make a donation or otherwise give us personal information. The information we may collect about you includes:

  • Your name and address;
  • Other contact information such as telephone number and email address. By providing your email address you agree to us sending you email from time to time about our activities (including fundraising) and other relevant information we think will interest you. You can let us know if you no longer wish to receive such information at any time.
  • Information about ways in which you would like to support us
  • Information about what news and publications you would like from us
  • Information about how you would like to be contacted
  • Information about why you like to support us, including information about your connection with kidney disease, if relevant and only if you choose to tell us this. By giving us any information about your or another person’s health or medical condition, you agree that we have permission to use that information to improve the quality of our supporter records and understand why people support our Charity
  • Your password and registration details so you can access log-on areas of our website if this is needed at any time in the future.
  • Your financial information for any donation you choose to make. Please note that if you make a donation via our website we do not retain details of your credit/debit card used to make the donation.  If you make a donation to us by phone or post with a credit/debit card we do not retain your card details;
  • Your bank account details if you choose to support us with a regular direct debit
  • Information that you choose to submit when contacting us or using particular features on our website.

What do we do with the information we collect?

We will always seek your consent to the use of your personal information. When we seek this consent we will tell you what we want to use it for and, other than described in this policy, we won’t use it for any other purpose. We may use this information for the following reasons:

  • To authorise your access to log-on to areas of our website if this becomes the case in the future;
  • To keep in touch with you as a supporter of the charity;
  • To send you information from time to time about our activities (including fundraising) and other relevant information that we think will interest you, but we will not do so if you tell us that you would prefer not to receive this
  • To respond to enquiries submitted by you and supply information you have requested (e.g. if you have subscribed to our newsletter);
  • Our internal record keeping;
  • To develop and improve the charity’s activities;
  • To process your donations;
  • To contact you for market research purposes e.g. to ask for your views

Who do we share this information with?

We will not sell your details to any third parties but we may sometimes share your information with our trusted third party service providers who are authorised to act on our behalf or our trading companies. The only third parties who we will allow to access your personal information are:

  • Our provider of the ‘standing order’ sign-up facility on our website; only for the purposes of capturing the information for secure onward transmission to alport uk to process
  • Our provider of website hosting and maintenance services, but only to the extent necessary for them to host and maintain our website.
  • Our providers of payment services in connection with your donations.
  • Our providers of fulfilment services for the purpose of sending you information.
  • Our provider(s) of telephone fundraising services, for the purposes of contacting you by phone, unless you have asked us not to do this

We will not pass your personal information to any other third parties without your permission or unless we are required to do so by law. We will not transfer your personal information outside the European Economic Area.

How to get copies of or amend the information we have collected

You may request details of the personal information we hold about you under the Data Protection Act 1998. The Charity’s policy is not to charge any fee for this service. If you would like a copy of the information we hold about you please contact us at info@alportuk.org

If you think any information we have about you is incorrect or incomplete, please email or write to us as soon as possible. We will correct or update any information as soon as possible.

Security

We are committed to ensuring that your information is secure. We and those third party service providers who we may allow to access your information have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect from you.

When you make donations via our website, your payment card information is collected and stored securely by our provider(s) of payment processing services.

Cookies

This section contains information on what ‘cookies’ are, the cookies used by alportuk.org, how to switch cookies off in your browser, and some useful links for further reading on the subject. If it does not provide the information you were looking for, or you have any further questions about the use of cookies on our website, please email info@alportuk.org

What are ‘cookies’?

‘Cookies’ are small text files that are stored by the browser on your computer or a mobile device. Websites are able to read and write these files, allowing them store things like personalization details or user preferences. You can think of cookies as providing a “memory” for the website, enabling it to recognise a user and respond appropriately. Each website can only access cookies stored by that specific web domain, meaning that only the alportuk.org servers can access the cookies set by the alportuk.org domains. Most web pages contain elements from multiple web domains. Therefore when you visit alportuk.org, your browser may receive cookies from several sources.

How does Alport uk use cookies?

A visit to a page like alportuk.org may generate the following types of cookie:

Anonymous analytics cookies Flash Cookies Registration cookies

Anonymous analytics cookies

Every time a user visits our website, web analytics software provided by a third party generates an anonymous analytics cookie. These cookies can tell us whether or not you have visited the site before. Your browser will tell us if you have these cookies, and if you don’t, we generate new ones. This allows us to track how many individual unique users we have, and how often they visit the site. These cookies cannot be used to identify individuals; they are used for statistical purposes only. This information enables us to improve our website, for example, to assess the impact of and develop campaigns and services.

Flash Cookies

Alport UK uses the Adobe Flash Player to deliver some of its attachments and downloads. To improve user experience, Local Shared Objects – or Flash Cookies as they are commonly known – are employed to remember your results once you have completed the health check. Flash Cookies are stored on a user’s device much the same as cookies are, however it is not possible to manage them at browser level in the same way.

Registration cookies

When you register with alport uk, we generate cookies that represent whether you are signed in or not. Our servers use these cookies to work out which account you are signed in with, and if you are allowed access to a particular service. If you have not selected ‘keep me signed in,’ your cookies get deleted when you either close your browser or shut down your computer.

How do I turn cookies off?

All modern browsers allow you to change your cookie settings. These settings will typically be found in the ‘options’ or ‘preferences’ menu of your browser. In order to understand these settings, the following links may be helpful; otherwise you should use the ‘Help’ option in your browser for more details.

We do not recommend turning cookies off when visiting alport uk, as this will prevent you from registering, signing in, and using many of the services on the site. However, if you are concerned about the use of cookies, then the information below will help you control their use during your browsing time.

If you are primarily concerned about third party cookies generated by advertisers, you can turn these off by going to the third party’s website and getting them to generate a one-time “no thanks” cookie, which will stop any further cookies being served to your machine. Here are links to two of the third party advertising platforms, each of which have instructions on how to do this:

DoubleClick (owned by Google) Google analytics

The Adobe website provides comprehensive information on how to delete or disable Flash cookies either for a specific domain like kidneyresearchuk.org or for all websites – see http://www.adobe.com/products/flashplayer/security for details. Please be aware that restricting the use of Flash Cookies may affect the features available to you for Flash based applications.

Useful links

If you would like to find out more about cookies and their use on the Internet, you may find the following links useful:

Microsoft Cookies guide All About Cookies

 

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