We publish newsletters for all our patients and here you can view them online.
Alport Newsletter Dec 2013
Alport Newsletter June 2014
If you would like to receive our newsletter via email, please email us.
Comments are closed.
February 26th, 2019
April 16th - 19th 2019
10am - 5pm
University of Manchester, Alliot Walk 37, M155 Manchester
Come and join us with Professor Rachel Lennon and team at Manchester University for a light-hearted dayread more
The 2019 International workshop on Alport Syndrome is 22-24 October in Siena, Italy. For more information please email firstname.lastname@example.org more
SONG (standardised outcomes in nephrology) initative by European kidney doctors: Please complete the survey to help them collect information about patient outcomes specifically about Alport syndrome.
Alport UK, as a patient-drivenread more
A drug company in the USA is inviting UK patients and caregivers to complete the following survey and do a follow up phone interview. Alport UK asked them to presentread more
Maintained by Amar Mohammed