We publish newsletters for all our patients and here you can view them online.
Alport Newsletter Dec 2013
Alport Newsletter June 2014
If you would like to receive our newsletter via email, please email us.
Comments are closed.
The 2021 online International Workshop on Alport Syndrome: 30 November – 4 December 2021. Registration opens 18 October.
May 12th, 2022
SAVE THE DATE
Alport Information Day - Newcastle, UKSaturday 1st October 2022.
More details to follow but please put it into your diary - we’d love to see you there!
SAVE THE DATEThe 2022 International workshop on Alport SyndromeTaking place in Calgary, Canada and onlineWednesday 7th September 2022
Programme and more details to follow.
February 15th, 2022
Enormous thanks to Alport supporters Jo and Phil who earlier this month organised a private concert by the amazing singer PJ Powers - Thandeka who you might remember sang ‘Worldread more
November 22nd, 2021
Like our new Alport merchandise? We've got a couple of Christmas offers for you if you've been eyeing up our webshop and thinking you might want to buy some thisread more
Maintained by Amar Mohammed