there are many organisations around the world with information on Alport Syndrome, for patients and children.
Alport Syndrome Foundation – https://www.alportsyndrome.org/
Alport Syndrome Foundation of Australia – https://www.alport.org.au/
AIRG France – https://www.airg-france.fr/
AIRG Belgium – https://www.airg-belgique.org/
NDCS – National Deaf Childrens Society – https://www.ndcs.org.uk/
Connevans – https://www.connevans.co.uk/
For Children – https://www.infokid.org.uk/
Medicines for Children – https://www.medicinesforchildren.org.uk/
For peoples experiences – https://www.healthtalk.org/
For patients – https://www.patientview.org/#/