alport uk


Our aim is to raise the profile of Alport Syndrome in the scientific community and advance the international research agenda. Our plan is to:

  • guide the development and maintenance of an international research strategy,
  • programme manage a series of international research workshops,
  • contribute to raising the profile of Alport Syndrome,
  • commission papers,
  • PR,
  • contribute to an alliance of national patient organisations and patient registries.

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