alport uk is a patient-led organisation dedicated to facilitating a support and information network for all those affected by Alport Syndrome.
our vision:
To ensure that all individuals and families with Alport Syndrome feel empowered to enjoy the best quality of life.
our mission:
Working in partnership with individuals, families and the scientific community we will:
- Facilitate a support network for patients and families
- Be a conduit for high quality, accessible information
- Raise the profile of Alport Syndrome in the scientific community
- Contribute to the international research agenda
- Collaborate on the development of a UK patient registry and alliance of international patient registries.