what we do

alport uk is a patient-led organisation dedicated to facilitating a support and information network for all those affected by Alport Syndrome.

our vision:

To ensure that all individuals and families with Alport Syndrome feel empowered to enjoy the best quality of life.

our mission:

Working in partnership with individuals, families and the scientific community we will:

  • Facilitate a support network for patients and families
  • Be a conduit for high quality, accessible information
  • Raise the profile of Alport Syndrome in the scientific community
  • Contribute to the international research agenda
  • Collaborate on the development of a UK patient registry and alliance of international patient registries.

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