alport research
Beijing workshop 4-7 September
Alport UK led the organisation of this amazing international workshop in the heart of Beijing. We started with an information day for Chinese and other visiting patients. There was a large UK contribution to the science, and international collaborations are … Read more
RaDaR is 15
About 1200 Alport patients are registered in the Alport cohort in the UK’s really impressive Rare Renal Disease Registry (RaDaR). This event (22 May 2025) was an occasion in London to meet with other rare disease groups, and celebrate the … Read more
Cyprus international workshop 14-16 March 2024
Another outstanding meeting was held at the Royal Hall in Nicosia, local host Prof Constantinos Deltas. The first day was entirely for patients, then an intense schedule of science with short breaks for forays into the city. It was attended … Read more
Are Flozins a treatment breakthrough for Alport syndrome?
Listen to Professor Richard Haynes of Public engagement at Nuffield Department of Population Health inviting you to join our next online workshop on Tuesday 5 January at 7pm GMT to find out more about SGLT2 inhibitors/Flozins and kidney health. Previously used in the treatment … Read more
The implantable bio-artifical kidney
A very interesting piece of research brought to us by one of our Edinburgh Meeting attendees Derek Keen. He has just accomplished 30 years on dialysis. A 3 minute video about a device which will transform the lives of many. … Read more
New Research in Manchester funded by KRUK
There is exciting new research being done in Manchester by Dr Michael Randles and Sophie Collinson. A two year project funded by Kidney Research UK … Read more
correction of the genetic defect in Alport syndrome using the TALEN approach
One of two projects recently funded by Alport Syndrome Foundation (USA). see article