other organisations

  • Action for Alport’s Campaign (KRUK)
  • Rarerenal.org page on Alport Syndrome (edited by Prof. Neil Turner)
  • Rare Diseases
  • British Renal Society
  • FEDERG
  • Eurordis
  • RD connect
  • RADAR
  • Alports Warriers facebook page (a closed group, please ask to join)
  • Action for Alport’s facebook and twitter
  • Infokids

Other national patient organisations:

  • Alport Syndrome Foundation
  • Alport Syndrome Foundation of Australia
  • AIRG France, Belgium etc

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