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reading and resources

International Workshop flyer

 
The Draft of the detailed agenda for the International Workshop

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    Fundraising concert

    December 12th, 2022

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    A big thank you to Penny Ritchie Calder, her family and friends, plus the Battersea Choral Society for raising close to £10,000 in memory of her husband Nick Bundy –
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    Royal Free Hospital and Great Ormond Street Hospital are looking for a small group of Alport patients aged 6-30 with certain gene changes (nonsense mutation) to participate in a clinical trial of testing a new treatment

    December 6th, 2022

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    Eloxx, a pharmaceutical company, is testing a new treatment that they think might help certain people with Alport Syndrome. Alport syndrome is caused by changes (called mutations) in certain genes. Only
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    All funds go to Alport UK. UK POSTAGE FREE. Our products reflect our values of quality whilst caring for the planet. Take a look at our shop: Our Alport Warriors hoodies
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    Register now for The 2022 International workshop on Alport Syndrome

    August 18th, 2022

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    Register now for The 2022 International workshop on Alport Syndrome - Wednesday 7 September 2022On behalf of the Workshop Organising Committee for The 2022 International workshop on Alport Syndrome, we
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