alport latest news

Alport UK Christmas Cards now FOR SALE

We have a selection of cards for sale this year – some hand   drawn ones at £2.50 (plus P&P)each for a pack of 8, or leaping reindeers, snowmen and hares priced at £4 (plus P&P).  Do email us at info@alportuk.org if … Read more »

The 2017 International Workshop on Alport Syndrome, 4-6 September 2017, Glasgow, UK.

The 2017 International Workshop on Alport Syndrome, 4-6 September 2017, Glasgow, UK. By invitation – open to scientists and people living with Alport Syndrome. Email research@alport.info if you would like an invite or to come and meet the researchers or … Read more »

Updated Website

The fundraising part of our website is now up to date with all the lovely fundraising that has been going on in all sorts of interesting locations. From kilt walking in Scotland to cycling in the Alps to Yorkshire Marathons. Check out … Read more »

alport uk Information Day 7th January 2017

Following the great successes of our previous information days we are holding one focusing on research in London – please see flyer for details London Information Day Flyer

The implantable bio-artifical kidney

A very interesting piece of research brought to us by one of our Edinburgh Meeting attendees Derek Keen.  He has just accomplished 30 years on dialysis. A  3 minute video about a device which will transform the lives of many. … Read more »

New Research in Manchester funded by KRUK

There is exciting new research being done in Manchester by Dr Michael Randles and Sophie Collinson. A two year project funded by Kidney Research UK                               … Read more »

shining a light on Alport Syndrome

The 2014 International Workshop on Alport Syndrome, held in Oxford, 3-5 January 2014, brought together interested medical professionals, scientists, geneticists, academics, researchers and patient representatives from all over the world. alport uk hosted the international workshop at the Said Business … Read more »

correction of the genetic defect in Alport syndrome using the TALEN approach

One of two projects recently funded by Alport Syndrome Foundation (USA). see article  

a review of psychosocial support for those living with Alport Syndrome

We drafted a brief for a review of psychosocial support for those living with Alport Syndrome see draft attached In a survey we ran at the end of last year about your priorities for research into Alport Syndrome, both patient … Read more »