Volunteer role at Alport UK

Interested in sharing/taking on the role of Alport Online Workshop Manager and working with the Alport UK team – a brighter future for those living with Alport Syndrome?

6-8 hours a week, working hours flexible, home-based with technology supplied, if necessary.

Flexibility, methodical and reliability required.

If interested, please email Susie info@alportuk.org or call 01793 847264

The global nature of our workshops means they often start in the early evening (UK time) so the manager will potentially work one evening a week. Options as a voluntary or paid role. Relevant experience needed ideally, but not essential as we can train you up. Role requires:

  • Talking with patients, senior researchers and clinicians, around the world, to co-ordinate with them about presenting or moderating at an online workshop
  • Experience of setting up Zoom webinars and meetings. We have a strong team of young Alport warriors who do the production of the webinars themselves.

Detailed job description available on request.

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