Interested in sharing/taking on the role of Alport Online Workshop Manager and working with the Alport UK team – a brighter future for those living with Alport Syndrome?
6-8 hours a week, working hours flexible, home-based with technology supplied, if necessary.
Flexibility, methodical and reliability required.
If interested, please email Susie firstname.lastname@example.org or call 01793 847264
The global nature of our workshops means they often start in the early evening (UK time) so the manager will potentially work one evening a week. Options as a voluntary or paid role. Relevant experience needed ideally, but not essential as we can train you up. Role requires:
- Talking with patients, senior researchers and clinicians, around the world, to co-ordinate with them about presenting or moderating at an online workshop
- Experience of setting up Zoom webinars and meetings. We have a strong team of young Alport warriors who do the production of the webinars themselves.
Detailed job description available on request.