A drug company in the USA is inviting UK patients and caregivers to complete the following survey and do a follow up phone interview. Alport UK asked them to present the results at The 2019 International workshop on Alport Syndrome in Siena, in Italy (22-24 October)
Alport UK, as a patient-driven charity, is not endorsing this company or the clinical trial or any other company or trial. We are simply sharing the information with you.