alport support

Cocoa drop-in

January 27, 2021

Many of you mentioned how useful you found the Christmas drop-in so we’re holding another on Wednesday 3 February. It’s very informal – you’ll be able to see the other participants on Zoom. We’ll share Alport UK’s plans for 2021 … Read more »

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a review of psychosocial support for those living with Alport Syndrome

September 17, 2014

We drafted a brief for a review of psychosocial support for those living with Alport Syndrome see draft attached In a survey we ran at the end of last year about your priorities for research into Alport Syndrome, both patient … Read more »