Author name: alport17

Eloxx, a pharmaceutical company, is testing a new treatment that they think might help certain people with Alport Syndrome. Alport syndrome

We were thrilled to be in Manchester yesterday celebrating the launch of the Alport Research Hub. Watch the video here.

Enormous thanks to Alport supporters Jo and Phil who earlier this month organised a private concert by the amazing singer

Psst! We are delighted to be able to announce that you can now buy Alport merchandise from our website –

Our next online workshop is on Wednesday 7 July at 7pm BST. Email research@alport.info for Zoom link.  Find out about some

Join a workshop about hearing – learn tips from patient experiences, find out about the latest hearing devices, and participate

Save the Date! Join us at Podocyte 2021 to hear about the latest research, and for great sessions on nutrition,

Our first informal chat for 18-35 year old Alport patients happened on Zoom and we’re holding monthly get-togethers with the

If you missed Tuesday’s workshop on the research being done on Alports in China by Professor Jie Ding and her

Interested in sharing/taking on the role of Alport Online Workshop Manager and working with the Alport UK team – a brighter

Is Alport syndrome more common that historically thought? Join our next online workshop and hear about the research of Assistant

Our next Alport online workshop on Transplantation TONIGHT Wed 27 Jan at 7pm GMT gives Alport patients who are on

Great to read that some of our UK transplanted patients, like Paul Matthews, are now vaccinated. You may be aware

A personal invitation from Aura Zealey-Smith and Patrick Walker to join an informal Christmas Drop-In on Tuesday 1 December 7pm-8pm.