Alport info day Nottingham 5 July 2025
A great day with local host Dr Matt Hall and a great group of patients and families.
A great day with local host Dr Matt Hall and a great group of patients and families.
Dr Sian Griffin and colleagues joined the Alport UK Team for a great day.
Eloxx, a pharmaceutical company, is testing a new treatment that they think might help certain people with Alport Syndrome. Alport syndrome
We were thrilled to be in Manchester yesterday celebrating the launch of the Alport Research Hub. Watch the video here.
Busy, active, lots of questions and discussion, and Prof Sayer collected urine samples for lab analysis! Later walks along the
Enormous thanks to Alport supporters Jo and Phil who earlier this month organised a private concert by the amazing singer
Psst! We are delighted to be able to announce that you can now buy Alport merchandise from our website –
Saturday 31st July from 10am-4pm is an online Alport information day. It’s FREE for patients to join and is open
Our next online workshop is on Wednesday 7 July at 7pm BST. Email research@alport.info for Zoom link. Find out about some
Join a workshop about hearing – learn tips from patient experiences, find out about the latest hearing devices, and participate
Save the Date! Join us at Podocyte 2021 to hear about the latest research, and for great sessions on nutrition,
Our first informal chat for 18-35 year old Alport patients happened on Zoom and we’re holding monthly get-togethers with the
If you missed Tuesday’s workshop on the research being done on Alports in China by Professor Jie Ding and her
Interested in sharing/taking on the role of Alport Online Workshop Manager and working with the Alport UK team – a brighter
Is Alport syndrome more common that historically thought? Join our next online workshop and hear about the research of Assistant
Many of you mentioned how useful you found the Christmas drop-in so we’re holding another on Wednesday 3 February. It’s
Our next Alport online workshop on Transplantation TONIGHT Wed 27 Jan at 7pm GMT gives Alport patients who are on
Great to read that some of our UK transplanted patients, like Paul Matthews, are now vaccinated. You may be aware
Listen to Professor Richard Haynes of Public engagement at Nuffield Department of Population Health inviting you to join our next online workshop
A personal invitation from Aura Zealey-Smith and Patrick Walker to join an informal Christmas Drop-In on Tuesday 1 December 7pm-8pm.