Category: stories
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Becca and Jamie take on 200 miles for Alport UK
This September, best friends Becca Tapsell and Jamie Longley are taking on a big challenge: walking 100 miles each in 30 days to raise money and awareness for Alport UK. Becca’s story For Becca, the challenge is deeply personal. Becca is 19 and lives with Autosomal Recessive Alport Syndrome (ARAS). She was diagnosed around 10…
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Katie’s story: “The Transplant Games represent normality for people like us.”
The story of Katie Brown, from dialysis to the British Transplant Games.
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How one Facebook post changed the life of an Alport family
Sarah was four when she started passing blood in her urine. Nobody could have imagined that it was Alport syndrome. Doctors first suspected another kidney condition. It was only four years later, when genetic testing became available, that Sarah and her family finally had an answer. Sarah had autosomal recessive Alport syndrome caused by changes…
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Kamran’s story: finding answers through early diagnosis
My name is Zahra and today I want to share the story of my son Kamran with you. The beginning of the journey Kamran was six when we first went to A&E. He had been complaining of stomach pain for a while – the kind you hope is just a bug or something that will…