Last updated: 30 July 2026
At Alport UK, we are committed to protecting your privacy and handling your personal information responsibly. This Privacy Policy explains what information we collect, how we use it, and your rights.
Who we are
Alport UK is a UK registered charity supporting people living with Alport syndrome through support, education, research and advocacy.
If you have any questions about this policy or how we use your data, please contact us:
Email: info@alportuk.org
What information we collect
Depending on how you interact with us, we may collect:
- Your name
- Email address
- Telephone number
- Postal address
- Donation information
- Fundraising information
- Event registrations
- Survey responses
- Information you choose to share when contacting us
We only collect information that is necessary for the services we provide.
How we use your information
We use your information to:
- Respond to enquiries
- Provide support and information
- Process donations
- Administer fundraising activities
- Register you for events
- Send newsletters and updates (where you have consented)
- Improve our website and services
- Meet our legal obligations
Marketing communications
If you subscribe to our newsletter or agree to receive updates, we may contact you by email.
You can unsubscribe at any time using the link in our emails or by contacting us.
Donations
If you make a donation, your payment is processed securely through our payment providers.
Alport UK does not store your full payment card details.
Sharing your information
We do not sell your personal information.
We may share information with trusted service providers who help us operate our charity, including:
- Website hosting providers
- Email marketing providers
- Payment processors
- Event management platforms
These organisations are required to protect your information.
How long we keep your information
We only keep your information for as long as necessary to fulfil the purpose for which it was collected or to meet legal requirements.
Your rights
Under UK data protection law you have the right to:
- Access your personal information
- Correct inaccurate information
- Request deletion of your information
- Restrict or object to processing
- Withdraw consent where applicable
- Request a copy of your information
To exercise these rights, please contact us at:
Keeping your information secure
We take appropriate technical and organisational measures to protect your personal information against unauthorised access, loss or misuse.
Changes to this policy
We may update this Privacy Policy from time to time. The latest version will always be available on our website.