Month: February 2021

  • Volunteer role at Alport UK

    Interested in sharing/taking on the role of Alport Online Workshop Manager and working with the Alport UK team – a brighter future for those living with Alport Syndrome? 6-8 hours a week, working hours flexible, home-based with technology supplied, if necessary. Flexibility, methodical and reliability required. If interested, please email Susie info@alportuk.org or call 01793 847264 The global…

  • Is Alport syndrome more common than we thought?

    Is Alport syndrome more common that historically thought? Join our next online workshop and hear about the research of Assistant Professor Moumita Barua and Vanessa Williams at the University of Toronto. Working with genetics databases such as those from UK Biobank and deCODE in Iceland, Moumita Barua’s genetics studies have identified that Alport syndrome may…