Month: January 2021
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Cocoa drop-in
Many of you mentioned how useful you found the Christmas drop-in so we’re holding another on Wednesday 3 February. It’s very informal – you’ll be able to see the other participants on Zoom. We’ll share Alport UK’s plans for 2021 and bring you up to date with the UK Covid-19 vaccination guidance for renal patients…
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Transplantation
Our next Alport online workshop on Transplantation TONIGHT Wed 27 Jan at 7pm GMT gives Alport patients who are on the kidney transplant journey the opportunity to hear about the experience of a recent young transplant patient. Email research@alport.info for Zoom link to the meeting. Supported by clinicians and other Alport patients take this chance to ask…
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UK vaccination for relatives of transplant/stage 5 dialysis patients
Great to read that some of our UK transplanted patients, like Paul Matthews, are now vaccinated. You may be aware solid organ transplant recipients and now also adults on dialysis or with chronic kidney disease (stage 5) are eligible for vaccines. We have one of our trustees – Colin Baigent (an Alport and transplant patient…
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Are Flozins a treatment breakthrough for Alport syndrome?
Listen to Professor Richard Haynes of Public engagement at Nuffield Department of Population Health inviting you to join our next online workshop on Tuesday 5 January at 7pm GMT to find out more about SGLT2 inhibitors/Flozins and kidney health. Previously used in the treatment of diabetes, SGLT2 Inhibitors/Flozins, approved for use in kidney patients, could be a treatment breakthrough…