Month: February 2019

April 16th – 19th 2019 10am – 5pm University of Manchester, Alliot Walk 37, M155 Manchester Come and join us with Professor Rachel Lennon and team at Manchester University for a light-hearted day to create some short information videos and reconnect with members of the Alport community you might have met before. Whole days with…

The 2019 International workshop on Alport Syndrome is 22-24 October in Siena, Italy. For more information please email research@alport.info

SONG (standardised outcomes in nephrology) initative by European kidney doctors: Please complete the survey to help them collect information about patient outcomes specifically about Alport syndrome. Alport UK, as a patient-driven charity, is not endorsing this company or the clinical trial or any other company or trial. We are simply sharing the information with you.…

A drug company in the USA is inviting UK patients and caregivers to complete the following survey and do a follow up phone interview. Alport UK asked them to present the results at The 2019 International workshop on Alport Syndrome in Siena, in Italy (22-24 October) Alport UK, as a patient-driven charity, is not endorsing…