Alport UK Monthly Archives: February 2019
Teen & Young Adult Day Event
April 16th – 19th 2019 10am – 5pm University of Manchester, Alliot Walk 37, M155 Manchester Come and join us with Professor Rachel Lennon and team at Manchester University for a light-hearted day to create some short information videos and … Read more
2019 International Workshop
The 2019 International workshop on Alport Syndrome is 22-24 October in Siena, Italy. For more information please email research@alport.info
SONG – standardised outcomes in nephrology
SONG (standardised outcomes in nephrology) initative by European kidney doctors: Please complete the survey to help them collect information about patient outcomes specifically about Alport syndrome. Alport UK, as a patient-driven charity, is not endorsing this company or the clinical … Read more
Help Alport Syndrome Research
A drug company in the USA is inviting UK patients and caregivers to complete the following survey and do a follow up phone interview. Alport UK asked them to present the results at The 2019 International workshop on Alport Syndrome … Read more