We publish newsletters for all our patients and here you can view them online.
Alport Newsletter Dec 2013
Alport Newsletter June 2014
If you would like to receive our newsletter via email, please email us.
Comments are closed.
Podocyte 2021 – Patient information day – Sat 31 July
2021 International Workshop on Alport Syndrome – late Nov 2021
July 1st, 2021
Saturday 31st July from 10am-4pm is an online Alport information day. It’s FREE for patients to join and is open to everyone. Topics: latest clinical trials, nutrition, exercise, and connectingread more
June 30th, 2021
Our next online workshop is on Wednesday 7 July at 7pm BST. Email email@example.com for Zoom link.
Find out about some exciting work with an Alport dog colony and gene editing plusread more
June 7th, 2021
Join a workshop about hearing - learn tips from patient experiences, find out about the latest hearing devices, and participate in the Q&A. This informal workshop takes place on Wednesdayread more
May 26th, 2021
Save the Date! Join us at Podocyte 2021 to hear about the latest research, and for great sessions on nutrition, diet and exercise. Patients are very welcome to attend bothread more
Maintained by Amar Mohammed