Month: September 2014
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shining a light on Alport Syndrome
The 2014 International Workshop on Alport Syndrome, held in Oxford, 3-5 January 2014, brought together interested medical professionals, scientists, geneticists, academics, researchers and patient representatives from all over the world. alport uk hosted the international workshop at the Said Business School, University of Oxford. Delegates came from: Australia, China, USA, Canada and Europe. We are…
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correction of the genetic defect in Alport syndrome using the TALEN approach
One of two projects recently funded by Alport Syndrome Foundation (USA). see article
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a review of psychosocial support for those living with Alport Syndrome
We drafted a brief for a review of psychosocial support for those living with Alport Syndrome see draft attached In a survey we ran at the end of last year about your priorities for research into Alport Syndrome, both patient and clinician responses highlighted the need to review what social and psychological support is available…