Alport UK Monthly Archives: September 2014

shining a light on Alport Syndrome

The 2014 International Workshop on Alport Syndrome, held in Oxford, 3-5 January 2014, brought together interested medical professionals, scientists, geneticists, academics, researchers and patient representatives from all over the world. alport uk hosted the international workshop at the Said Business … Read more »

correction of the genetic defect in Alport syndrome using the TALEN approach

One of two projects recently funded by Alport Syndrome Foundation (USA). see article  

a review of psychosocial support for those living with Alport Syndrome

We drafted a brief for a review of psychosocial support for those living with Alport Syndrome see draft attached In a survey we ran at the end of last year about your priorities for research into Alport Syndrome, both patient … Read more »