Alport UK Monthly Archives: December 2022
Fundraising concert
A big thank you to Penny Ritchie Calder, her family and friends, plus the Battersea Choral Society for raising close to £10,000 in memory of her husband Nick Bundy – an Alport Warrior. Thank you to Nick’s daughter and son … Read more
Royal Free Hospital and Great Ormond Street Hospital are looking for a small group of Alport patients aged 6-30 with certain gene changes (nonsense mutation) to participate in a clinical trial of testing a new treatment
Eloxx, a pharmaceutical company, is testing a new treatment that they think might help certain people with Alport Syndrome. Alport syndrome is caused by changes (called mutations) in certain genes. Only a very small proportion of gene changes (called ‘nonsense mutations’ … Read more
Need ideas for Christmas presents?
All funds go to Alport UK. UK POSTAGE FREE. Our products reflect our values of quality whilst caring for the planet. Take a look at our shop: Our Alport Warriors hoodies £34.99 – made from organic cotton and recycled polyester … Read more